Relatives and Carers

Relatives and Carers Order Leaflets

The Marie Curie Palliative Care Institute believes that best practice in care of the dying should be seen as the norm not the exception in our society.

We aim to drive up quality of care from customer service to patient experience, to innovation, to efficiency by ensuring the views of patients their relatives and carers is at the heart of what we do and how we do it.

We promote best practice in care of the dying. Our research, teaching and models help others.

This page has been written to provide relatives and carers with useful information that is available for them.

The Marie Curie Palliative Care Institute has a variety of information leaflets that relatives and carers may find helpful.

If you would like to order them, please click here.

Public outreach engagement and Impact

Please see below the web links to a variety of organisations that support and provide information for relatives and carers:

 

Useful Links

  • Marie Curie Cancer Care Charity provides to everyone with cancer and other illnesses high quality care and support they need at the end of their life in the place of their choice
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  • Dying Matters Let’s talk about it in 2009, the National Council for Palliative Care (NCPC) set up the Dying Matters Coalition to promote public awareness of dying, death and bereavement
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  • Macmillan Cancer Support are a source of support, helping with all the things that people affected by cancer want and need. It's not only patients who live with cancer; they also help carers, families and communities. They guide people through the system, supporting them every step of the way
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  • Carers Trust vision is in a world where the role and contribution of unpaid carers is recognized and they have access to the quality support and services they need to live their own lives.
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  • Carers direct UK provides information and advice to carers- NHS Choices
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  • Carers UK is a charity set up to provide information and advice about caring alongside practical and emotional support
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  • The National End of Life Care Programme works with health and social care services across all sectors in England to improve end of life care for adults by implementing the Department of Health’s End of Life Care Strategy.
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  • VOICES (Views of Informal Carers-Evaluation of Services). The Office for National Statistics (ONS), on behalf of the Department of Health, launched the first ever national bereavement survey to measure care at the end of life in October 2011. The survey is based on the successfully evaluated VOICES (Views Of Informal Carers – Evaluation of Services) questionnaire, which was developed by Professor Julia Addington-Hall, and has been adapted for national use.
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  • The National Council for Palliative Care is and umbrella organisation for all those who are involved in providing, commissioning and using hospice and palliative care services in the UK
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